Sponsored Symposia
Moving MEK Inhibitor Therapy FORWARD in NF1: A Neuro-Oncology Forum on Real-World Application of Recent Data for Improving Patient Care
Date: Monday, 29 June 2026
Time: 12:30 PM - 1:15 PM
Location: Cockle Bay Room 2
Cure Fund Session
Date: Monday, 29 June 2026
Time: 12:30 PM - 1:15 PM
Location: Meeting Room C3.2
This session will be delivered by two renowned international NF1 experts and promises to be both informative and practical. The program is designed to integrate real-time assessment of clinician practice patterns, focused expert presentations, and multidisciplinary case discussions. The aim is to provide clear, actionable guidance on several key areas:
Foundational diagnostic and surveillance strategies for NF1 and associated tumors, emphasizing consensus criteria and practical implementation.
Personalized management approaches for both pediatric and adult patients with NF1-PN, with special focus on MEKi therapy, including insights on efficacy, safety, and dosing.
Collaborative multidisciplinary strategies for comprehensive treatment planning in NF1, covering toxicity management, ongoing monitoring, transition strategies, and supportive care throughout the disease journey.
The Cure Fund provides up to $50,000 USD in targeted, early-stage funding to support high-potential, innovative research concepts, the kind of bold “2 am Big Ideas” that keep you awake and may require early, proof-of-concept funding. Applications must be focused on paediatric brain tumour research, with preference given to projects that embrace universal-cure strategy implications.
Turning Pain Into Action
Date: Tuesday, 30 June 2026
Time: 7:00 AM - 7:45 AM
Location: Cockle Bay Room 1
The presentation tells the personal story behind the founding of The Medulloblastoma Initiative (MBI) and highlights its unique collaborative model, which accelerates research and shortens the path to clinical trials, with donations managed by Children’s National Hospital.
Key speaker: Fernando Goldsztein.
Fernando Goldsztein is an entrepreneur in the construction sector and a board member of Cyrela, one of Brazil’s leading real estate development companies. In 2021, Fernando discovered his true life mission with the creation of The Medulloblastoma Initiative, a groundbreaking project co-founded with Dr. Roger Packer. Its goal is to unite a global network of scientists and institutions to accelerate the development of a cure protocol, aiming to save the lives of thousands of children diagnosed with this devastating disease worldwide.
“Targeting the Change” – From Diagnosis to Therapy in H3 K27M Diffuse Gliomas
Date: Tuesday, 29 June 2026
Time: 12:30 PM - 1:15 PM
Location: Meeting Room C3.2
Lecture 1: Evolution of Management Strategies for Pediatric H3 K27M-Altered Diffuse Gliomas
Speaker: Michelle Monje (Stanford Univ)
Lecture 2: ONC201 in H3 K27M–Altered Diffuse Gliomas: Clinical Development with Emerging Evidence
Speaker: Cassie Kline (CHOP)
